Wednesday 19 October 2011
The "40% with Harrington Rods are legally defined as handicapped" chestnut
“Forty percent of operated treated patients with idiopathic scoliosis were legally defined as severely handicapped persons 16.7 years after the surgery."
Long-term results of quality of life in patients with idiopathic scoliosis after Harrington instrumentation and their relevance for expert evidence. Journal of the American Medical Association (JAMA), Stuart Weinstein, MD, University of Iowa, 2003. Gotze C, Slomka A, Gotze HG, Potzl W, Liljenqvist U, Steinbeck J.Z Orthop Ihre Grenzgeb 2002 Sep-Oct;140(5):492-8
Sounds scary, right? Except, it isn't really, not when one learns the context of this quote.
The Weinstein study that is referred to is this one:
Health and Function of Patients with Untreated Idiopathic Scoliosis: A 50 Year Natural History Study Stuart L Weinstein, MD; Lori A. Dolan, MA; Kevin F. Spratt, PhD; Kirk K. Peterson, MD; Mark J. Spoonamore, MD; Ignacio V. Ponseti, MD JAMA 2003;289(5):559-567
It does not refer at all to patients who have had surgery. The whole article is concerned with people who had untreated scoliosis. It does refer to disability; it states that 39% of these people felt they had a disability compared to 30% of the non-scoliotic control group. It also makes reference to other studies, of which the following may be of interest: "Horel showed that patients with scoliosis did not represent a disproportionate number of disability pensions" and "Danielsson and Nachemson, in comparing previously braced patients and patients who had undergone surgery....found little evidence to suggest that either patient group was significantly impaired relative to their peers. Another recently reported follow-up of more than 20 years found no difference in quality of life, including back pain and function, between adolescent idiopathic scoliosis patients who had undergone surgery and those who remained untreated".
As stated above, this study does not refer to disability rates in people with Harrington fusions at all.
The actual study which is relevant is the following (originally published in German):
Long-term Results of Quality of Life in Patients with Idiopathic Scoliosis after Harrington Instrumentation and their Relevance for Expert Evidence Gotze C, Z Orthop Ihre Grenzeb 2002 Sep-Oct:140(5):492-8
The aim of this study is stated as follows: "The expert evidence of operated patients with idiopathic scoliosis is determined by functional and pulmonary restriction. The degree of deformity and the extent of fusion is crucial for grading disability. In a retrospective study on the quality of life (SF-36) and low back pain (Roland-Morris Score) of 82 patients (22-40 years) with idiopathic scoliosis treated with Harrington instrumentation the grading was registered."
Note that this is a discussion about disability grading. In Germany, people with physical impairments are graded according to the "Severely Handicapped Act 1996" for employment purposes, to ensure that they are not discriminated against because of disability. There are various grades, or percentages, of disability. For "Spinal Injury" these grades are as follows:
10%: low functional effects (deformity, low-grade recurrent or persistent restriction of movement)
20&: moderate functional effects in one vertebral segment of the spine (deformity, often recurrent or persistent severe restriction of movement, instability)
30-40%: severe functional effects in two vertebral segments
50-70%: particularly severe effects (eg stiffening of large parts of the spine; lasting immobilisation by orthosis, including the three sections of the spine (eg Milwaukee brace), severe scoliosis of 70 degree Cobb angle or greater
80-100%: severe limitation in walking and inability to stand
As we can see, being legally defined as "50% handicapped" simply means that you have a spinal fusion OR are wearing a large brace such as the Milwaukee. It DOES NOT mean that you are crippled. You do not necessarily need to be suffering from any side-effects at all from having had that surgery or wearing that brace; the law has simply been made to protect you from discrimination in employment. ANYONE with a Cobb Angle of 70% or greater is automatically graded as 50%, whether they have had surgery or not! I would imagine that there are many, many people who are "legally defined as 50% handicapped" in Germany who are happily living their lives and not giving a second thought to the fact that they had scoliosis surgery or have a fairly large curve. Sadly, this has been seized upon by ignorant scaremongering "alternative practitioners" and is posted, out of context, all over their websites.
Saturday 20 March 2010
FULL OF LIES AND SCAREMONGERING: "Scoliosis: The Untold Truth"
Every year in the United States, roughly 20,000 Harrington rod implantation surgeries are performed on patients with scoliosis, at an average cost of $120,000 per operation.
Incorrect - the Harrington Rod is no longer used. It has not been routinely used in the United States, or in most other first world countries, for at least 20 years. The Harrington Rod was the first rod that was specifically invented for scoliosis surgery, and it has now been superceded by more modern instrumentation. Problems that were associated with Harrington Rods have now been addressed in the design of today's hardware, and no longer occur.
One-third of all spinal surgeries are performed on scoliosis patients. Every year, about 8,000 people who underwent this surgery in their youth for the correction of their scoliosis are legally defined as permanently disabled for the rest of their lives. Even worse, follow-up x-rays performed upon these individuals reveal that, an average of 22 years after the surgery was performed, their scoliosis has returned to pre-operative levels.
This statistic is supposedly taken from Radiologic Findings and Curve Progression 22 Years After Treatment for Adolescent Idiopathic Scoliosis: Comparison of Brace and Surgical Treatment With Matching Control Group of Straight Individuals, published in Spine Journal, March 2001.
The "40% of all people who had surgery end up defined as legally handicapped" quote is a favourite of the scaremongerers. Note, once again, it refers to people who had surgery many years ago with the Harrington Rod. It isn't relevent today because the problems that used to happen with Harrington fusions have been addressed.
“[Complications] include the syndrome of inappropriate antidiuretic hormone, pancreatitis, superior mesenteric artery syndrome, ileus, pneumothorax, hemothorax, chylothorax and fat embolism. Urinary tract infections, wound infection and hardware failure are not addressed.” [They were not addressed because happened so often!]
The surgeries were performed between 1972 and 1982 (ie between 28-38 years ago!). This is historical data!